When I met my husband 8 years ago I was clearly in a place of me. I was single and yes, had lost my parents but I was career driven. Then God and even before, gave me the not about me family.
I met my husband. He was so different and challenged me in different way. He didnt understand me but he clearly got me.
I met his family and I am sure in my 5 inch heels and who I am was a bit much but like Lois Lane, I was blessed was some amazing sisters. I was blessed with Carrie and Mic.
Carrie. How do I begin. Clarity. Such a beautiful soul that has 5 children. Bella boo is all so special. Bella has VLCAD.
VLCAD is a recessive gene disorder and one that is rare. Her's is cardiac.
The picture is her rock star Halloween princess photo. Yes, much like my Rocky, she is a rock star.
ghr.nlm.nih.gov/.../very-long-chain-acyl-coa-dehydrogenase-deficie...
Learn more and help if you can raise awareness. Hopefully. one day we can find a a cure. The reality is that there aren't a lot of statistics of patients after the age of 20. Our reality and my belief is in the reality of who believe because with science being what it is, we can save lives and promote change.
No comments:
Post a Comment